Katelyn Bedard Bone Marrow Association. Someone is looking for a needle in a haystack... you might be the needle!

Katelyn Bedard

Katelyn Bedard If Only There Had Been a Donor for Katie... Katie was such a precious little girl. She loved to sing songs, make crafts and play games with her brother and cousins. She was diagnosed with Acute Myeloid Leukemia (AML) not long after her second birthday. After treatment with chemotherapy, the Leukemia went into remission but it eventually came back, just days before her third birthday. The only thing that could cure her of this life threatening disease was a bone marrow transplant.

Sadly, nobody in the bone marrow registry was a match for Katie. She never received the bone marrow transplant she desperately needed and in June, 2005, little Katie earned her angel wings. She was only 3 and a half years old.

If only there had been a match for Katie in the bone marrow registry. If only more people were aware of the desperate need for bone marrow donors. Please help:

Join the bone marrow registry today
Spread the word - Tell your friends and family.

Swab Events

To date 1040 people have participated in our swab events.
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In The News

The Windsor Star
November 6, 2010

Windsor girl inspired Bone Marrow Awarenss bill

Windsor girl inspired Bone Marrow Awarenss bill

Katelyn Bedard may have died at age three from leukemia, but she will be forever remembered as the Windsor girl who inspired Bone Marrow Awareness Month.

Continue reading...


The Toronto Star
November 7, 2010

Coyle: Bone-marrow transplant month is young Katelyn’s legacy

Bruce Crozier is not an MPP given to rhetoric, hyperbole or self-aggrandizement. He’s a certified general accountant, for crying out loud. He favours bow-ties in an unretro, un-ironic sort of way. He’s solid, dependable, methodical, in the manner of his profession and of good constituency politicians.

Story by Jim Coyle

Continue reading...


The Windsor Star
November 16, 2009

University students offer hope to patients on stem cell, bone marrow registry

University students offer hope to patients on stem cell, bone marrow registry

University of Windsor student Jillian Popovich, 20, uses a swab Monday, Nov. 16, to collect her DNA sample, which will be placed in the OneMatch Stem Cell and Marrow Network. Observing was Andrea Sulyok, the director in charge of volunteers with the Katelyn Bedard Bone Marrow Association.

Story by Sonja Puzic
Photo by Scott Webster

Continue reading...


The Windsor Star
September 19, 2009

Weekend Children's Fest serves up fun for a purpose

Weekend Children's Fest serves up fun for a purpose

Erin Lehmann, 6, found and matched a rubber duck in the Match Game event by Katelyn Bedard Bone Marrow Assoc. at Children's Fest sponsored by Rotary Club of Windsor (1918) Saturday September 19, 2009. The family festival runs Saturday and Sunday at Children's Safety Village on Forest Glade Drive.

Story by Sarah Sacheli
Photo by Nick Brancaccio

Continue reading...

Events

Thursday - May 30, 11:30am - 2:00pm

Swab Event
Parks & Rec BBQ and Bake Sale
2461 McDougall Ave
Click to view PDF file.

Wednesday - June 12, 2013 4:00 pm - 8:00 pm

Swab Event
Recreation Centre
242 Talbot St North, Essex
Click to view PDF file.

Thursday - June 13, 2013 4:00 pm - 8:00 pm

Swab Event
CBS Office
3909 Grand Marais Rd East
Click to view PDF file.

Make a Donation

You can make a donation to the Katelyn Bedard Bone Marrow Association online through the PayPal service.

*** As a registered Canadian charity we are happy to provide a Canadian charitable donation tax receipt.

Join The Registry

I Joined The Registry...

If you have joined the Bone Marrow Registry add yourself to the "I Joined" list and let others know you have made a difference.

Click here to sign the
"I Joined" guestbook

Here are the last few people that signed the guestbook:

I Joined!

Mary (Marja) J. Sepers
Acton, ONTARIO
Joined 1987 (27 years)
"Not sure it was 1987 I joined but it was a happy moment the year I knew I could offer my part of such possibilities."

Donna Tell
Barrie, ONTARIO
Joined 1998 (16 years)
"I know that I can make a difference, not only as a Bone Marrow Donor but as an Organ Donor too! To Save A Life, can you just imagine! Lets do it everyone! We Can, so Let's Do!!"

Brandon Holland
Windsor, ONTARIO
Joined 2014

Helen Jones
Gloucester, GLOUCESTERSHIRE
Joined 1999 (15 years)
"I joined Anthony Nolan bone marrow register 15 years ago. Recently, I started raising awareness for others to join in memory of my brother, Robert, who lost his life to leukemia aged11 after a 5 year battle in 1978. In 2013 my daughter, Rachel, began stu"

Chelsey Stachow
Windsor , ON
Joined 2010 (4 years)

Click HERE to view
a complete list.

* People listed with a butterfly icon show that they were inspired to join the Bone Marrow Registry after visiting this website.

Video

Please Join the Bone Marrow Registry Video

Our YouTube video provides some basic information about the bone marrow registry and why it is critical that people of all ethnic backgrounds join the registry today.

Photos

Click any photo to view a larger size or check out our photo group HERE.

Twibbon

Help support our cause by adding this button to your website, blog, Twitter, or Facebook account.

Click here for more details.


Tuesday, March 18, 2014

Not So Boring Conversations

Bryan Bedard president of the Katelyn Bedard Bone Marrow Association sat down to record an episode for the podcast Not So Boring Conversations where he tells us Katie's story and what grew out of that experience.

Not So Boring Conversations - Episode 3 - Katie
Not So Boring Conversations - Episode 3 - Katie



Wednesday, November 6, 2013

Get Swabbed Events!

Tuesday, Nov 19th, 2013 - 11am - 2pm
St. Joseph High School


Click to view Facebook event page.


Wednesday, November 13, 2013 - 10am - 4pm
University of Windsor St. Denis Centre and HK Building


Click to view Facebook event page.


Wednesday, November 13, 2013 - 9am - 4pm
University of Windsor Toldo Building


Click to view Facebook event page.



Wednesday, September 9, 2013

Public umbilical cord blood bank launches in Ottawa

Public umbilical cord blood bank launches in OttawaPhoto provided by CBC News

Today marks an important day for the National Public Cord Blood Bank as Canada�s first collection site(s) at The Ottawa Hospital and Canadian Blood Services� Concourse Gate manufacturing facility, is now collecting, manufacturing and storing umbilical cord blood stem cells for patients in need.

With $6.3M in charitable donations through the fundraising campaign �For All Canadians,� both the National Public Cord Blood Bank and the capital campaign remain side-by-side towards reaching a campaign goal of $12.5M; continuing to build a national public cord blood bank with an approximate target of 18,000 donated cord blood units over six years.

The opening of The Ottawa Hospital General and Civic Campuses and Concourse Gate manufacturing facility will now offer new moms the opportunity to donate their babies� umbilical cord blood to help any patient in need. Collections will begin in three other major Canadian cities in 2014: Edmonton, AB; Brampton, ON (part of the Greater Toronto Area) and Vancouver, BC. The establishment of these collection sites is part of the process as we continue to build Canada�s first national public cord blood bank. A second manufacturing facility will be opening in Edmonton AB in mid-2014.

The National Public Cord Blood Bank will benefit Canadian patients and the country�s health care system by providing those in need of stem cells with increased opportunity for transplant and reducing Canada�s current 100 per cent reliance on internationally sourced cord blood stem cell donations.

A national public cord blood bank is especially important for Canadian patients because of our country�s ethnically diverse population. Approximately 75 per cent of Canadian patients requiring a stem cell transplant must look outside of their immediate families for a match. Canada�s diverse population is under-represented on the OneMatch Stem Cell and Marrow Network that currently lists adult stem cells for national and international selection. As each collection site comes online, the data from all banked cord blood donations will be listed within Canadian Blood Services� OneMatch Stem Cell and Marrow Network and available to all Canadian and international patients currently searching for an unrelated stem cell match.

You can read the full article at CBC News website.



Thursday, June 6, 2013

Research Update 2013 by Drew Kidd

The past year has been one of the most exciting for the KBBMA on the research front. Certainly, a highlight for the organization was bringing Dr. Claude Perreault of the University of Montreal, the head of one of the two research teams currently being funded by the KBBMA, down to Windsor for a public speaking engagement. For his public talk, Dr. Perreault discussed the efforts of his lab to combat graft versus host disease (GVHD) through enhancement of graft versus leukemia (GVL), the ability of donor T-cells to combat cancerous cells in the host body. The Perreault lab has been able to decrease the risk of rejection and GVHD by targeting the MiHAs (the cell receptors governing the body's immune responses) with specially primed T-cells that are injected directly into the patient. Early clinical trials have demonstrated that this treatment can reduce the risk of GVHD down to 10%, potentially reducing patient mortality in Canada alone from 60,000 to an estimated 1,600 a year. Dr. Perreault discussed his research in further detail at another talk at the University of Windsor; both talks were tremendous successes and we would like to thank the Caboto Club, the Department of Biology at the University of Windsor and especially Dr. Lisa Porter of the University of Windsor, head of the other research team funded by the KBBMA, for all their help and hard work in organizing them.

Far from being a dry discussion of the science behind his work, Dr. Perreault provided a vibrant, personal story of a life in research, and he also provided some words of advice to any aspiring young scientists in the audience. Among them were two students at Vincent Massey Secondary School, Melanie Grondin and Shawn Liu, who had recently made not just their school but their entire city proud. As Windsor's first participants in the national BioGENEius competition, Shawn and Melanie followed up some of the work that Porter lab grad student Kaitlyn Matthews had completed on how gene expression levels change as bone marrow cells divide and grow, and used this data to identify markers for at-risk cultures. Their work has the potential to more safely expand and control bone marrow cultures in a lab or hospital setting. Melanie and Shawn were rewarded with first prize at the Regional Competition for Southwestern Ontario, as well as awards for Best Genomics Project and Best Entry From a New Participating School, and subsequently competed at the National Competition in Ottawa where they received an Honorable Mention for their work. Through its funding of Kaitlyn, who mentored Shawn and Melanie throughout the entire process, the KBBMA was able to provide financial support for their work, and we wish both of these promising young scientists the best in the future!

Both Kaitlyn and her fellow Porter lab graduate student Ingrid Qemo have continued their very impressive work at the University of Windsor through funding provided by the KBBMA. Kaitlyn completed her Master's Thesis, �The Role of Spy1 in Hematopoiesis: Implications for Blood Malignancies,� in December. Kaitlyn found that the cell cycle regulator Spy1 is more highly expressed in the early stages of blood stem cell growth and that it drops off as the cells mature, implying that it plays an important role in retaining stem cell characteristics. She further discovered that when Spy1 is removed from human leukemia cells, they decrease in growth and proliferation. Kaitlyn is currently preparing her findings for publication, as well as mentoring a new undergraduate student, Jack Pfaff, for a project on the role of Spy1 in multiple myeloma. Ingrid's work has focused on the role of Spy1 in generating safe stem cell cultures for future bone marrow transplantation therapies. By examining the precise mechanisms behind this particular protein's role in stem cell growth and development, she has demonstrated the possibility of more safe and efficient means of growing, generating and expanding existing stem cell cultures for cancer patients. On the basis of this work, she was awarded an Ontario Graduate Scholarship to continue her efforts. Both Ingrid and Kaitlyn would like to thank the KBBMA for all their help and support, and we in turn would like to thank them, as well as Dr. Porter and Dr. Perreault, for making us proud!



Tuesday, May 28, 2013

Get Swabbed Events in Honour of Lori

As a mother, wife and elementary school teacher, Lori is very busy. So when she started to feel tried, she blamed it on the �Busy Mom Syndrome�. Only after much blood work and three bone marrow biopsies did Lori learn that she had a different syndrome- Myelodyplastic Syndrome (MDS). Lori�s best hope to getting her health and continuing in her normal Mom duties is a stem cell transplant.

Lori�s hope that her story will inspire people to register with OneMatch to help patients, like her. You can make a difference in your community, your country and around the world by registering at onematch.ca

Wednesday, June 12 - 4pm-8pm Recreation Centre 242 Talbot St North, Essex

St Clair College Swab Event
Click to view PDF file.

Thursday, June 13 - 4pm-8pm CBS Office 3909 Grand Marais Rd East

St Clair College Swab Event
Click to view PDF file.



Monday, April 22, 2013

Parks & Rec BBQ and Bake Sale Swab Event

Get Swabbed! Thursday, May 30 11:30am to 2:00pm at 2461 McDougall Ave.

St Clair College Swab Event
Click to view PDF file.



Tuesday, March 5, 2013

St Clair College Swab Event

Get Swabbed! Monday March 25, 2013 10am to 4pm at St. Clair College.

St Clair College Swab Event
Click to view PDF file.


A Journey in Bone Marrow Transplantation

Thursday, April 4, 2013 at the Caboto Club with guest speaker Dr. Claude Perreault.

A Journey in Bone Marrow Transplantation
Click to view PDF file.



Thursday, January 31, 2013

Family Calls for Stem Cell Donors

13 year old Alex Blake�s family are calling on people to join the marrow registry in hopes that a match can be found for their daughter.

Alex Blake

Diagnosed with acute myeloid leukemia Alex has already undergone several days of chemotherapy in hopes to push the cancer into remission and now needs a stem cell transplant in hopes of developing a new immune system.

You can read the full article at CBC News website.



Wednesday, December 12, 2012

Altered Immune Cells Beat Leukemia

An experimental treatment using a disabled form of the virus that causes AIDS has been used to reprogram a young girl�s immune system to genetically kill cancer cells.

Emma Whitehead
Photo by Jeff Swensen for The New York Times

Emma, who had been sick with acute lymphoblastic leukemia since she was 5 had relapsed twice after undergoing chemotherapy. Running out of options her parents turned to an experimental treatment at the Children�s Hospital of Philadelphia.

You can read the full article at The New York Times website.



Tuesday, November 13, 2012

National Public Cord Blood Banking Program

This past weekend One Match openned its new National Public Cord Blood Banking program.

National Public Cord Blood Banking Program
Click here to view the CBC story
.


Operation Alysha Blood Donor Drive

If you live in the Guelph area please come out and support the Operation Alysha blood drive Thursday November 29th, 5-7pm at Silvercreek Parkway Blood Donor Clinic.

For more information visit the Operation Alysha website.



Tuesday, November 6th, 2012

Cord Blood Collection Will Be Phased into Canadian Hospitals

Cord Blood collection will be phased in over the next few years in hospitals for mothers in Ottawa, Toronto, Edmonton and Vancouver .

Click here to view One Match brochure with more details.



Friday, November 2nd, 2012

Bruce Crozier Bill 80 November Bone Marrow Awareness Month

It was a very emotional day for us when our friend, the late MPP Bruce Crozier succeeded in making November "Bone Marrow Awareness Month" in the province of Ontario. Here is a clip of the historic event we witnessed first-hand in Queen's Park.


Friday, October 26th, 2012

OneMatch University of Windsor Swab Event

University of Windsor Swab Event
Click Here to View Full Size Flyer

Get Swabbed!
November 1, 2012 - Thursday
University of Windsor 3 Campuses
CAW Student Centre, Toldo Building West Lobby and St Denis Centre - 10am to 6pm

Special Need for Registrants Who Are:

  • 17 to 35 year old males who are ethnically diverse;
  • in good general health; and,
  • willing to donate to any patient in need.

You can join OneMatch at www.onematch.ca


Monday, October 15th, 2012

OneMatch Registration in Honour of Manjot

OneMatch Registration in Honour of Manjot
Click Here to View Full Size Flyer

Sikh Cultural Society of Metropolitan Windsor
7955 County Road 42, Maidstone ON
Sunday, October 21
12:30 p.m. to 3:00 p.m.

Special Need for Registrants Who Are:

  • Ethnically diverse males between 17 and 35 years of age;
  • In good general health; and,
  • Willing to donate to any patient in need.

You can join OneMatch at www.onematch.ca


Monday, June 18th, 2012

Get Swabbed! In Honour of Pamela

Get Swabbed! In Honour of Pamela
Click Here to View Full Size Flyer

Get Swabbed! In honour of Pamela, a local woman who is in urgent need of a life saving Stem Cell/Bone Marrow transplant.

Hosted by the Katelyn Bedard Bone Marrow Association, you can register as a potential donor on Saturday, June 23 1pm-5pm at the Atkinson Memorial Centre 4270 Alice Street, ( Alice & Bernard Rd) Windsor.

Registrants aged 17-50 are welcome however their is an urgent, specific need for optimal donors who are Males aged 17-35 and who are ethnically diverse.

In just 5 minutes you could save a life!


Chatham-Kent Get Swabbed Event

Chatham-Kent Get Swabbed Event

Gabriela Deryck of Chatham was among the approximately 40 people who took part in the Get Swabbed event at the John D. Bradley Convention Centre on June 2. Held as a function of the Welcome Home Chatham-Kent weekend, the goal was to find matching donors for cancer victims in need of a blood stem cell or bone marrow transplant.


Thursday, June 7th, 2012

What kinds of donors are needed?

Right now there is a special need for ethnic males aged 17 to 35.

If you are healthy, between the ages of 17 and 50, and are willing to donate stem cells to anyone in need, you may be able to help. The genetic markers used to match donors to patients occur with different frequencies in different ethnic groups. For this reason, a person's best chance of finding a matching donor is within his or her own ethnic group. Therefore, donors from as many ethnic communities as possible are needed to enhance the database so it has a broad ethnic representation that reflects the needs of all Canadian patients.

While OneMatch has made advances in attracting more ethnically-diverse registrants, there is still room to grow. As of October 2008, 83 per cent of Canada's Network is Caucasian and the remaining 17 per cent is of various ethnic backgrounds. Yet one in five Canadians identifies themselves as foreign born according to the 2006 Census.



Tuesday, May 8th, 2012

Why Patients Need an �Optimal� Donor Base in Canada

As the future of stem cell transplantation gets brighter, the demand for quality stem cell products continues to grow. To keep pace with this demand and to ensure the best possible donors for our Canadian patients and those around the world, OneMatch continues with its pursuit to create the optimal donor base.

Through consultations with partners and the transplant community, we recognize that young, male and ethnically diverse donors are most often the optimal donor for patients in need. Young male donors often provide good results for patients post-transplant by reducing chances of graft-versus-host disease. As a result, starting in 2012 OneMatch will focus its recruitment efforts on ethnically diverse men between the ages of 17 and 35.

Knowing young men are most likely to be the choice donor, developing the optimal donor base is especially significant in Canada. Recent statistics paint a clear picture of the need:

  • The OneMatch Network has 309,000 searchable registrants;
  • Only 31 per cent of the Network is under 36 years old and only 10 per cent are males under the age of 36; and
  • Of this 10 per cent, only 4 per cent are from different ethnic backgrounds.

At any given time we must provide the more than 950 Canadian patients waiting for their �one match� with a better chance of finding their donor.

Community education and outreach is the first step to raising awareness and recruitment. For example, university students across Canada contributed to OneMatch with its third annual Get Swabbed! University Challenge. Twenty campuses from coast to coast organized stem cell registration drives focusing on getting more young men to join the registry. Students continue to embrace the recruitment challenge as an effective and engaging way to give back. Queens University is one of the many examples of how raising awareness can benefit recruitment. Students at the university registered young men and educated the young women on the need for male donors. In turn, young women recruited male students to register in their place, or made appointments to donate blood and help patients in need of blood products. The stories from other participating universities are similar. Together the 20 participating schools provided an influx of 7,578 new registrants, 3824 (or 53 per cent) of whom are young, ethnically diverse male donors, all with the potential to help patients in need for many years to come.

Taking this direction in all future recruitment efforts, OneMatch will be on track to creating the optimal registry of Canadian donors for all our patients.


Wednesday, March 28th 2012

Thank You St. Clair College Students

Thank You St. Clair College Students

Tuesday, March 27th, 146 students from St. Clair College swabbed their cheeks to save lives.

Photograph by: Tyler Brownbridge, The Windsor Star


Tuesday, March 13th 2012

Get Swabbed Event

Tuesday - March 27, 2012
9:00 am - 3:00 pm
St. Clair College
Centre for Applied Health
Sciences & Main Campus
Multi Purpose Room

In just 5 minutes, you could change a life forever.

Currently more than 900 patients are looking for a match in Canada. You could be that match.

You can be the one match to save a life.

Special Specific Need For:

  • 17 to 35 year old males who are ethnically diverse;
  • in good general health; and,
  • willing to donate to any patient in need

Vist www.facebook.com/onematch for more details or download the poster.


Monday, March 5th 2012

Bone Marrow Donor, Survivor Meet for First Time

Get ready to cry! This story was made possible by those inspired by Katie. A bone marrow drive held by Katie's cousin in her honour led to this match. We have always said that if we only help one person then all our efforts were worthwhile. By why stop now? Let's keep it up and save more lives!


Tuesday, January 24th 2012

OneMatch Recipient Story - Dr. Abhijit Guha

This is Dr. Guha's story. Dr. Guha was the driving force behind increased South Asian participation in blood and stem cell donation. Sadly, he lost his battle with leukemia on Tuesday, November 8, 2011. Dr. Guha was a respected community leader who fought courageously through his personal fight with leukemia to encourage all Canadian South Asians to make stem cell and blood donation a part of their civic responsibilities for all patients.


Tecumseh, Ontario Man Seeks Donor

A 54-year-old Tecumseh man finally celebrated Christmas with his family Saturday.

Ever since he was diagnosed last September with multiple myeloma - a cancer of the plasma cells in bone marrow - Jim Beneteau found his life reduced to a "slow pace" spiked with anxiety.


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